Moving to a new house and having Fibro

Moving  to a new house with Fibro

Participating in our move to a new house while suffering with Fibro has not been a dream at all. While moving I had a pinched nerve for the first week from packing and moving boxes. Ointments, massage nor a hot Epsom salt bath helped me. The whole time we were moving boxes into and out of the truck I could feel nerves all over my body. The first one made my lower back unbendable.

After that the nerve decided to call all its relatives that lived through my left thigh. After all the pain and immobility I was still quite proud of myself. I could do that much physical activity. Just very carefully so I would not continue to injure myself further. I ended up having immobility for three weeks. I thought I was going to need a masseuse. But here I am able to sit up straight and type on the computer. So things are looking up.

Our new house has made almost all of us happier. Our middle child is unhappy about the change in his school. Other than that he is happy though.

I was out of action with my blogging for a couple of weeks due to this move but I am very proud of myself for everything I did. I accomplished a lot for someone with fibromyalgia. There is no way I could move all of our belongings every day.

This move also showed me that some days I do not feel like I can stand, sit or move in anyway but I really can. Very slowly or very painfully but I can move and for that I am thankful. On some very horrible days I need my husband to wash my hair. In the end it all balances out.

For weeks after this move I had the constant additional nerve pain from the pinched nerve. I still had to keep on going, being up on my feet all day everyday. Either a family member needed me or the house needed something. I tell you my husband and I are used to relaxing after dinner but there has been none of that lately.

And then there was family

Have you ever felt as if there was no catching up on your to do list? For some reason with this move we have not been able to catch up. Whether it is something for our new home or the past home there is always something. Then you add in everything every family member needs as well and the list just never becomes any shorter.

My kids decided to grow during our move, all three of them at the same time. Don’t you just love it when they work as a team! One of our sons bedding decided to fall apart. He had already moved onto another interest anyway so it wasn’t such a big issue for him. But for me it was another addition to my ever growing list.

In this house I have also taken the time to make the kids bedrooms more of a private sanctuary for them. I hope they enjoy it and if not maybe one they will look back and be able to say mom always knew what I was into while I was growing up.

And now back to the move…

I felt very proud of myself when I moved every single box from my house with my husband. I was actually an active member of my family. More like the wife my husband used to know. He complemented me many times, he was proud of all the work I was able to do. My husband would talk to me about how I would not have been able to do this much work just a year ago. And he was right, I lived a different lifestyle a year ago.

The lifestyle I lived a year ago was much more confined into my chair and bed. I was doing everything I could while I was catering to my pain but I wasn’t living. Something I am very glad of is, I changed my lifestyle. I am forever thankful that I am the type of person who can and will change things to better myself.

If you ever do find yourself moving from one home to another make sure to get a great back brace.

This is what I still have left to go through, sometimes it’s hard being the mom and wife. 

Now, I need to take a deep breath and unpack all of this. WHY!!!

 

 

 

When you have multiple diagnosis

 

Multiple diagnosis = Multiple side effects

Having multiple diagnosis you never know exactly what is causing you to have a side effect.

I have been diagnosed with, Fibromyalgia, Chronic Sleep Deprivation, Vitamin D deficiency, Anemia, hyper-joint mobility, hypothyroidism, Hashimoto’s Disease and I know I am forgetting one other diagnosis.

But that is my brain lately. I am unable to remember some faces, no matter how long I have known them. Asking people “Who are you?” every time you see them can get embarrassing. I just tell them, I’m sorry ever since my diagnosis of Fibromyalgia I have a problem remembering faces.

My current problem

I am having a lot more forgetfulness lately. I cannot remember where I park a car. Unless I park in the same row every time I go anywhere. Which is not always a possibility.

This morning I used the more expensive gas to fill up my car. I have no idea what I was thinking. I do not remember really reading the option buttons. I just pushed one and filled it up. Thank goodness I didn’t use diesel gas by mistake.

Anyone I am talking to, I might as well just say “Hey you.”. I will run through a whole list of names verbally. Even though I am thinking about that persons name I will say someone else’s name.

Which medical problem is that?

Since I have several medical problems that can cause confusion or also known as brain fog. I have no idea which medical problem may need to be tweaked so I can think again. Sometimes I wonder how in the world I write this blog. But I do and some people like it enough to subscribe to it.

I am excited that I am starting to get subscribers. It does make you wonder though, if I can write this well with a fogged brain, how well could I write with a fully functioning non-fogged brain?

Sometimes I get so fogged out that I feel like my brain is a science experiment. As if a scientist has messed with it to much and now they need to allow it to heal.

I just zone out on who knows what. You are supposed to be there for your family but your brain says “out of order”.

Which diagnosis is that?

My diagnosis that can cause this issue of brain fog are:

Fibromyalgia, of course that is a big one. And for this diagnosis there is very little we can do. Relax, distress, rest, sit in silence

Anemia, iron and rest.

Hypothyroidism, take the medication prescribed but I do not. Remember I am not a healthcare professional so I am NOT telling you to stop taking medication. When I was on the medication for hypothyroidism my hair was falling out, I had brain fog more consistently, I was taking four hour naps everyday, sex life was horrible, dry skin. I got off the medication and that all changed.

Hashimoto’s disease is the auto immune disease for Hypothyroidism so I do the same things for these two diagnosis.

Vitamin D deficiency, relax in the sun for a couple minutes everyday and a nutritious diet.

Chronic Sleep Deprivation, sleep is how I take care of that one.

This one or that one?

However, if you have no idea which medical problem is causing the side effect it can feel impossible to take care of yourself. When you are suffering from brain fog you are also unable to remember everything that might help. Even if you write it all down in your medical journal you may completely forget about that helpful journal.

And when you add kids or visiting extended family into the mix your brain has an even harder time at functioning.

I wish I could function better but until that day comes I will be thankful for living today. Make sure to journal your horrible and fantastic days alike. I love this journal because it has a nice bright color and the engraving of the flower. The amazing title of the journal was the first thing that caught my eye,   “All Things Are Possible” journal. We need to remember that, all things are possible even when we feel like this pain or exhaustion will never end.

Make sure to add the things that help you so maybe this magical journal can help you on your bad days.

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Why I stopped taking prescriptions

 

Why did I get rid of the prescriptions?

I decided to stop using the muscle relaxers, pain killers and sleep medications when I figured out what was in them. The painkiller I took was Vicodin. I did not know it was a narcotic when I started taking it. When a doctor gives you something you think it is going to be good for you. Never did I think to question the doctor. So after about a year of taking this drug I started hearing things about it and thought, that does not sound like something I want. So I looked up what it contained.

Once I found out what was in the medication I was not happy. At the time I was raising three children ages, one-year-old, three-years-old and an eight-year-old. Plus my eldest has special needs, my hands were very full. Help was needed, not something that could make me worse. I had told my doctor I was feeling drugged. When I felt drugged I was unable to be the mother my kids needed. I already did not take it on days I had to drive anywhere. So stopping the medication seemed like the best thing to do for me and my family.

Keeping records

Before I talked to my husband about my thoughts I kept a journal on how often and why I was taking the medication. I also recorded the days I was in a lot of pain but did not take the medication because I had to drive. I was noticing when I took a week off from the medication I was able to have more days with less Fibromyalgia side effects.

Once I saw the pattern of less Fibromyalgia side effects when I did not take the medication, I decided to talk to my husband. I talked to him one night about why I thought the pain killers were not in my best interest to take. Also I told him about my journal and the findings. And I told him I would need his help with the house and the kids while I found a natural way to deal with my pain.

Another worry

As I was reading more into the details of what long term use of these drugs could do to me I became worried about something else. I was worried about organ transplants and being there to see my babies grow up. When I was first given these medications I was just 30-years-old. The women in my family, on both sides live well into their 90’s. I had to many years to possibly plan for and I wanted to be in the best health I could be. I shared this worry with my husband as well. He understood my concern and supported my decision to also stop taking the medication for muscle relaxation.

The after effect

When you change you see the lightWhile going through the detox from no longer taking the medication for pain and muscle relaxation I did go through more pain. I went through extra pain for six weeks. After that very painful period of time I was starting to have a little less Fibro Fog.

I started exercising at night a few times a week as well. I started exercising at night because that was the only time I had available to do something for myself. Before I developed Fibromyalgia I loved exercise. So it was nice to start doing something I enjoyed so much. Through my exercise journal I realized the exercise also helped my Fibro pains as well as my ability to sleep better. I tried the harder workouts because in America you either go big or go home, right? But with Fibro that was soon to be seen as not a proper option.

My favorite exercise on a Fibro day

My best friend in my home gym is my treadmill. I love my treadmill very much and have no idea how I would get through Fibromyalgia without it. I get to get a workout in whenever my schedule allows. And as anyone with Fibro knows, a nice easy workout is best, especially when we are already in pain. So what in the world is easier than walking. Even on a bad day I can go out for a gentle walk. The first five minutes may include the worst pain I think I have ever felt but I swear just wait for that sixth minute. On the sixth minute I start to feel every pain slowly go away and your mood swing leaves, plus what Fibro Fog. If I am at my worst nothing beats an easy walk.

I know most of us think easy or gentle and we turn to Yoga. I know I did and so far this is my favorite Yoga video. The first video is my favorite one and it has a great combination of relaxation, gentle stretching and movement. My Fibro does not like it when I hold a yoga pose to long. My body decides to develop muscle cramps everywhere.

What exercise routine makes you happy?

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What is Fibromyalgia

What it feels like to have fibromyalgia

Fibromyalgia

What is Fibromyalgia? That is a question that when searched on the internet is improperly answered on most websites. So today I went in search of a credible website that gave a proper answer. Because most websites are very misleading when giving an accurate account of Fibromyalgia symptoms. All that is barely discussed is the pain we go through. They say we have widespread pain and joint pain. The side effects of Fibromyalgia are much more than just pain. Although I am sure anyone with Fibromyalgia would say the pain is more than enough to deal with.

Most websites I have ever come across leave out very important side effects. So if a spouse or someone who is undiagnosed went in search of answers they would be improperly informed. Most websites leave out the mood changes, lack of energy, sleep deprivation, and fibro fog or brain fog among others. These are very important side effects that inflict those with Fibromyalgia on a daily or almost daily basis. They also affect the loved ones who are searching for answers. Everyone with this medical condition suffers differently. The severity of the side effects and how much certain side effects affect us can also be different for each person dealing with this.

What is FIbromyalgia?So what is Fibromyalgia?

I have found a great website for explaining things, the Arthritis Foundation.  Since their explanation is so great I will leave it to them. They explain what it is, what you can do to take care of it, prescriptions offered and also why prescriptions are not a cure. I agree very much with everything I read from their website. I believe they have put an explanation of our condition together very nicely.

My own experience

Through my own research, I have found a couple of things that really help me. They are things that most people say they at either unwilling to do or can’t do for one reason or another. I find when someone is ready to get better they will try anything they have to. Until they are ready they cannot be pushed into anything.

Some things I treat my Fibro with

My favorite ways to treat my fibro is through exercise and nutrition. I am not talking about extreme fitness. For some reason in America, we believe more difficult or extreme the better. But that is not the case at all. A walk can be more than enough. Lifting light weights and moving the body part that is in pain for a period of time is a great option.

If I wake up in the middle of the night I will roll out my exercise mat and pick up the heaviest weights I have in my room. I then lay the weights on each side of me and I lay myself down. Then I will do chest work first because lifting the heavyweight will usually get me ready to sleep faster. If I am still awake after I have finished my chest workout I will grab a resistance band, put it around my calf and do leg exercises I can do while laying down. This is just an example of what I do. Not everything I do for my fibro is listed.

With my nutrition, I first started with supplements. I am not a healthcare professional so I turned to a book. I was raised with natural care and as I started raising my own family I decided on natural care too. Because whichever creator you believe in we were created naturally so why are we treating ourselves with man-made drugs? Regulated or not we do not need the drugs to live with Fibro. There are actual studies that say the pain-killers make our pain worse. I turned to the pain-killers for my first year of diagnosed Fibromyalgia too. So I know how people who use them feel, you want the pain gone, you just want to not feel for a while. Pain is exhausting, it changes your mood and who in the world wants to be in pain anyway??

I hope this helps.

After the supplements, I started on changing my food. This is the book I started my natural journey with.

I hope this post has helped you with the link to the Arthritis Foundations, What is Fibromyalgia. If you decide to try the natural way of healing I hope you can find things in the book I suggested to help you make your life better.

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In Rememberance of a Fibromyalgia Sufferer

 

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Remembering my Grandmother

Today I remember my Grandmother. As a small child I spent a lot of special time with my Grandmother. She would take me out shopping and from I have been told she spoiled me every chance she got. As I became older the shopping trips became a girls day out type of experience. My Grandmother was also the one who took me away from any painful time in my life as a child. She helped me by letting me live with her and my Grandfather two different times in my life. Once as a little girl and once as a teenager. I would love to send her a Thank You Card just for that alone.

Other Great Things

Other memories I have of my Grandmother is of her painting and sewing. I remember her drawing my first design I ever took a needle and thread to. It was a flower with my name written in cursive on the bottom right-hand corner of the flower. I loved watching her write too, she had such wonderful handwriting.

When I took care of her

When I was 10 years-old my Grandmother had a medical condition that put her in need of watching, just to make sure she didn’t need an ambulance. Thankfully she never did but for those 15 days I had some wonderful alone time with her. We watched many movies she loved, most of them starred the wonderful Better Midler. She would read one of her beloved books while I played with her dogs.

Later Years

Just two short years later my Grandmother was spending most of her days in her chair. Because most of her time was spent in pain and with her sitting in her chair I tried finding new things to bond us. We both loved to read to books became one of our new connections. I would love to send her a new book from an author we both enjoy.

My first experience with Fibromyalgia

When I experienced my very first episode of the painful side effects of Fibromyalgia, the first person I thought to contact was my Grandmother. She had several medical problems that caused pain so I thought she would be a good person to ask. Unfortunately since she did suffer from so many painful medical problems she was unable to help me very much. I know most of you would have called a doctor but before this all started I had never had much use for Doctors. I was a young mother with a deployed husband and I was scared something horrible was happening. The pain is scary the first time it hits you. Unlike childbirth you have no idea when it will end and you will not receive the most amazing gift when it is all over with.

I took to my chair just like my Grandmother did for about three years.  But I was 28 years-old when I first started going through all of the lovely side effects Fibromyalgia gives you. I was way to young and I had young children to take care of. I chose a different path to treat my Fibromyalgia because I have a long life to live still and I am sure everyone who loves me would like to see me actually live and enjoy it.

Disclosers

Disclosure

Hello Readers

I would like to let you know,

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I am not a medical provider, the information I give is solely based on my own personal experience and what worked or did not work for me. I am not liable for any readers health. If you choose to do anything whether if it is read on my website or not I am not responsible for the outcome.

My Fibromyalgia Story

Welcome to my personal experience with Fibromyalgia

I have been living with Fibromyalgia since 2011. The first three years I suffered undiagnosed. It was agonizing and made worse by the fact that I did not know what was happening to me. I stopped doing things I loved because I was afraid something horrible would happen and with my husband deployed I was all our kids had.

After diagnosis

After I was diagnosed I spent the next three years figuring out how to live with fibro. It was also an agonizing and frustrating process. At first I let the doctors treat me, nothing the doctors did, said or prescribed  worked. Everything the doctors had me try masked the pain and helped with sleep but I was still to exhausted and constantly having Fibro Fog, since I was still experiencing debilitating side effects of Fibro and feeling drugged, I decided to change somethings.

When I did not receive the recovery I wanted

When the doctors help was not working for me the way I wanted it to I stopped taking the pain killers they once prescribed me. Once I found out what was in those pills I decided I did not want to chance being on an organ transplant list. Which then resulted in me self medicating. After a lot of trial and error I finally found a way to live comfortably and happily with my Fibromyalgia.

My goal for sharing my discoveries

I want to share my personal experience with Fibromyalgia- my goal is to help others navigate their way through this debilitating condition. Make friends along the way that can help all of us understand how to live the life we always wanted to while Fibro comes along for the ride rather than Fibro ruling our bodies and lives.

Your Fibromyalgia

It is important to understand that Fibromyalgia effects everyone differently and that what worked for me may not work for you. But hopefully through sharing my discoveries you will be able to find something that helps you